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withdrawal from decreasing meds. - just a big fat rant.
Started
by Helly Whiting
on December 29, 2009
i'm merely just having a massive rant. I've been diagnosed with Ankylosing Spondilytis, which is a type of inflammatory arthritis. It left me suddenly unable to move/walk and it stems from my lower back (sacro-illiac joint). I got it quite severely and was in hospital for just under a month. It all started on the 1st November.
I'm only 20 and it all came as a bit of a shock but i have troubled with my health (mainly gastric IBS type symptoms)for years but nothing was ever found. Inflammatory Bowel Diseases can be linked to causing the arthritis but i've not been tested for them.
Anyway - i've been on dangerously high doses of morphine(basically heroin)+steroids for about 9weeks and with drs instruction i'm decreasing gradually - my stomach has been terrible the past week, bloated and so painful with terrible headaches.I'm allergic to gluten+accidently has some 2days ago, reaction was worst i've ever had.But i realise i was getting mild-mod discomfort+nausea after eating even good foods for me. I'm also getting oter withdrawals and the pain is coming back.
I was meant to be moving to london to start a new chapter but i'm stuck at home again. My tummy is just unbearable + I will call the doctor later just to make sure, but i know theyll just say it's withdrawal or IBS or whatevaaaaar.
I just feel i've got enough without this aswell. BOO HOO to me. - joking !
rant over, terribly sorry about that.arrrrrgh and i'm REALLY fowly irritable! i hate drugs SO much, i never wanted to go on them in the first place and i feel so chemical. My stomach reacts after anything i eat too and the bloating makes me weigh heavy(but when it settles that goes back to normal). I'm just fed up of this daily routine. I was feeling so good before the tummy stuff started. again.
anyway. i'll stop ranting. promise. :(
Helly (what a beautiful name) I am also on meds for arthritus although NO steroids. I am also allergic to non-steroidals (ie. aleve,asparin, ibuprophen, etc.) I know how it is to hurt and not understand how in the world it has to be so miserable.
I have fibromyalgia and Sjogrens Syndrome. And thyroid disease, high B/P, high cholesterol, thick blood, and on and on. AND, I am only 56. I am so sick of being sick. But the good news is we are both on the right path I think. I have ordered Alicia's book and can't wait to get it. I have already decided if my hubby is not on board with this, he knows how to cook for himself. After 30 years of marriage we both know we do have different interests and cravings. So that said, we can do this journey together!! ALL of us. That's why we are here. To help each other and learn from each other. I am so sorry you are hurting so much. Keep moving because having arthritis, you know that is important. Is there someplace you can go to a pool? That helps me so much! I cant over do on exercise but I am SUPER HUMAN in the pool! Good luck to you and keep your chin up.
Gracie - sorry to hear you have all that to contend with. I spoke to my doctor this morning because i'm getting worse with the withdrawal (from morphine - i feel like i have the worst hangover in the world, everyday) and my tummy troubles have flared up. She has reffered me to a gastric specialist because she said that fact that it's sparked when i reduced my steroid is connected as they're used to treat inflammatory bowel diseases which she thinks i might have. So atleast they're on to it - no matter what i eat it flares up, i had rice and veg your breakfast and boiled veggies and nori for lunch and have bad cramps. so annoying. As for the exercise, i go to hydrotherapy everyweek, i can only walk (ish) in the pool holding on to rails, i can't float my body yet. i can cope with the AS (ankylosing spondilytus) but it's the added tummy stuff i can't cope with.
I hope you get where you want to be and have the support you need. thank you for sharing and writing. xx
I have IBS and I know how aggravating it is to have even "good foods" hurt. I go up and down with it and I find when I juice for a couple days sometimes it resets me and I feel really good- no hurting. I know mine condition isn't quite as bad as yours but just throwing it out there. Nothing has felt as good as just having fresh juice for a couple days (not store bought juice-that is pasteurized and processed- I'm talking about with a good juicer and doing it yourself from scratch) its a natural high with no side effects.
thank you. don't be silly about not as bad etc, everyone's different and no matter what level it's blooming nasty! so hugs all round and thanks for the tip!
Helly....just want you to know I'm thinking about ya! I cant imagine all you are going through. And so young too. Do you ever meditate? If not, give it a try. And try to stick with this. I know a healing is on the way for me and you too. I cant wait to get Alicia's book. I'm such an impatient lady. LOL I'm so sorry you don't feel well. Keep in touch and let us know what the Dr. says.
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